I’m Going For A Walk – Will You Join Me?

When I was younger and had a lot more time, I participated in a few charity 5K races. Oh, don’t think for a second that I ran them. Winning didn’t matter to me, and besides, if I ran them I would have passed out before I hit 1K. A nice brisk walk was just fine for me, along with several others. I was there to support the cause, not to kill myself.

I’ve been wanting to do some of those again, and out of the blue I found and signed up for one that is May 3. Bonus: no running needed. Even better? It’s a cause I’m deeply committed to.

The Walk Now For Autism event is being held in Cincinnati on May 3, and I’ll be there with Mira on my back and Cordy and Aaron by my side. This walk is a fundraising event for Autism Speaks, an organization that is dedicated to increasing awareness about autism spectrum disorders, as well as funding research into the causes, prevention, treatments and cure for autism.

As many of you know, Cordelia was diagnosed as being on the autistic spectrum last fall. Officially, it’s PDD-NOS (pervasive developmental disorder, not otherwise specified), which means that she has autism-related delays in speech, motor skills, and social skills. I probably should have had her evaluated earlier. It took some time for me to accept that Cordy was different from many of her peers, but the full impact hit me when she was enrolled in a preschool last summer and we were told that she did not fit in well and had been permanently removed from the Friday assembly because of her inability to transition well.

She screamed as if she was in pain when they tried to make her fingerpaint. She fell to the ground, wailing, when her classmates got too loud. While the class watched a movie, she was off in another corner of the room, talking to herself as she lined up toys and created new patterns with colored blocks. And she never talked to the other kids – it was like they didn’t exist to her. If another child said hi to her, she ignored him or looked confused, not sure what to do.

She’s been attending a special needs preschool since the fall, and thanks to the therapy she receives there, her transformation has been amazing. She uses eating utensils now, something she never did before because she was afraid of dropping something gooey onto herself. She doesn’t get upset when I leave. She says hi to other kids and can name all of her friends at school. She fingerpaints! She sings! She uses full sentences to ask for things, and has even started saying “I’m sad,” instead of having a meltdown when she doesn’t get her way.

In fact, her meltdowns, which used to be a nearly daily occurrence, are now one or two a month, if that. She no longer tries to hurt herself by hitting her head on the floor, either. That has probably been the best change for me.

I can also put barrettes in her hair now. BIG accomplishment.

None of these things would have come so quickly (or at all) without help from her therapists and her skilled teachers. She still must deal with sensory issues upsetting her. She still relies too heavily on scripts (scripted phrases she repeats over and over), and while she’s more social with other kids now, the nuances of social interaction remain foreign to her.

However, these things will come with time and work. Her teacher reports that she has an amazing vocabulary and is far ahead of many of her classmates in letters, numbers, and other academic areas. She’s a smart girl with a bright future ahead of her, partially thanks to early intervention.

So it’s no surprise why I would want to participate in Walk Now For Autism. The research that has been done so far is already helping Cordy, and I want to see further research done to improve the therapies available for her and other kids on the spectrum. Cordy only gets a small amount of group therapy in her class each week (one hour of PT, OT, and speech), and while we are eligible for more therapy through the county, the wait list is long right now. We have one of the best health insurance plans in Ohio, yet our insurance refuses to pay for any therapy for Cordy. Autism is considered an “incurable and untreatable” condition by many insurance companies, and as a result any therapy must come out of pocket for us.

I also want to see more research into finding the causes of autism. Mira is nearing a year old, which is when we began to see some of Cordy’s quirks emerge. My fear that I will lose Mira’s outgoing nature to this disorder is understandable. I’m holding my breath, watching her carefully, and will likely not exhale until I see that she is a typically developing three year old. I wouldn’t trade Cordy for anything the world could offer, but parenting a child on the spectrum does have additional struggles, and having to do it twice is hard to imagine.

I set a modest goal of raising $250 for the walk. I think I can raise that amount in a week and a half, and would love to raise even more than that if possible.(Edited to add: Thanks to your generous donations, I’m now raising the goal to $500!) Would you consider contributing to my walk? Even $5 helps. Locals who want to walk with us on May 3 are also welcome to join my team. Online donations go straight to Autism Speaks, and like any donation to charity, are tax deductible. Thanks for anything you can give.

Also, while I’m on this topic, read my review of the Kibbles Rockin’ Clubhouse DVD at Mommy’s Must Haves today. It’s a DVD designed for children on the spectrum that teaches social skills, along with providing strategies for parents using music therapy and speech therapy.



I Feel 27 Again (Well, 27 Plus Two Kids)

I guess it’s been awhile since I gave a Hot by BlogHer update. You might wonder how I’ve been spending the past month, and if I’ve been keeping to the (vague) goals I set for myself.

The verdict is: it’s working. Here’s the breakdown.

Weight: I’m now down ten pounds since I said enough is enough. Did you catch that? T-E-N pounds! Sure, ten pounds in two and a half months isn’t a lot of weight – it works out to roughly a pound a week.

But those ten pounds have even more significance than half a dress size lost. First, my weight now begins with a 1 and not a 2. That’s an impressive feat, considering at one point in my life I weighed 245 pounds. Also, I’m now at the same weight that was recorded as my “starting weight” back when I was 27 and sitting in my paper gown on the cold table for my very first OB appointment ever. I haven’t seen those numbers since that day my doctor confirmed that Cordy was on her way into our lives.

Food & Exercise: I’ve cut a lot of the junk out of my diet. Fast food still hasn’t been eliminated from my diet, but when we do eat out, I’m making healthier choices, eating more vegetables, and passing on giant desserts. Portion sizes are the key for me – I’m still eating some of the junk I love, but not as much of it. Just two days ago, Aaron and I went out for ice cream, and instead of getting my own giant scoop of Graeter’s cotton candy ice cream in a chocolate-dipped waffle cone, we split a hot fudge sundae, and I ate maybe 1/3 of it total. Maybe less.

Exercise is, well, always a stumbling point for me. Finding time is hard, and finding the energy is even harder. I’ve been inspired by Karen, though, and now that the weather is nice I’m taking the girls out for long walks, and then trying to do a little weights work at home following the method that Madonna’s trainer uses. (Hey, if it works, right?) My goal for the next month is to make exercise my #1 priority.

Self-image: Earlier this month, I attended Camp Baby in NJ, and at first I was a little nervous about seeing some of the gorgeous women bloggers I know. I fretted over what to wear and how to do my hair, and for one tiny moment worried that no one would talk to me because I wasn’t worth talking to. However, I caught myself and quickly dropped the negative self-talk, and resolved to have a great time. I wasn’t going to let my self-image ruin this trip. I did talk to lots of bloggers, big and small, I dressed for comfort, and only rarely did I feel insecure.

Overall, I’d give myself a solid ‘B’ for my efforts. There are still lots of things I could improve on, but the changes I’ve made so far are working, even if they’re not producing results as fast as I might prefer. I don’t feel deprived of anything, I’m losing weight, currently at my lowest weight in four years, and I’m feeling better about myself. July is coming up quickly – I’m going to be ready for it. Maybe I’ll even wear a cute summer dress to one of the cocktail parties at BlogHer this year?

How is everyone else doing?



Haiku Friday: Ode To Twitter

I’m Twitter obsessed
“What are you doing?” beckons
Mini-blogging rocks

One hundred forty
characters is all you have
You must be concise

So many new friends
You can find anyone there –
Even TweetJeebus

To play along for Haiku Friday, follow these steps:

1. Write your own haiku on your blog. You can do one or many, all following a theme or just random. What’s a haiku, you ask? Click here.

2. Sign the Mister Linky below or at Jennifer’s blog with your name and the link to your haiku post (the specific post URL, not your generic blog URL). DON’T sign unless you have a haiku this week. If you need help with this, contact Jennifer or myself.

3. Pick up a Haiku Friday button to display on the post or in your sidebar by clicking the button at the top.

REMEMBER: Do not post your link unless you have a haiku this week! We will delete any links without haiku!



Dear Presidential Candidates,

Hi there. I’d like to talk to you a little about this election. I’m a mom of two, living in Ohio, with a family income under $50K a year. You could say I’m pretty close to the average American. I want to give you a few of my ideas about how to reach out to the American public, or if not them, at least me.

First off, please drop the mudslinging. I’m sick of it. I have to listen to my daughter argue with me enough, and I don’t need to see my presidential candidates bickering like three year olds, too. I don’t care who called who what – just tell me what you stand for and believe in, and let me do the comparison.

Second, please stop trying to demonstrate that you’re one of us. Seeing you have a beer in a local bar, go bowling (when you’re clearly not a fan of bowling), and try to act like you would hang out with me if you lived in my neighborhood doesn’t impress me. I don’t want to vote for the person I’m most likely to have a beer with, or the person I think is the best looking. This isn’t American Idol – this is for the most important job in this country. I don’t care if you’re good looking or can knock back shots of whiskey with the best of them. I want you to show me you’re smarter than me, and smarter than most of the people in this country. I want to know you can handle yourself with class amongst foreign dignitaries and not that you can use urban slang to appeal to me.

I’d like to hope that voters are a little wiser this time around. We saw what happened last time when voters picked the guy they would most like to have a beer with. Personality doesn’t equal competence. Show me you’re brilliant, you can think quick on your feet, and you’re ready to work hard for all Americans, and not just your rich friends.

There have been so many issues brought up this election, but I can tell you which ones are most important to me. I want to know how you will help pull this country out of a recession. How will you protect my family’s health care benefits so that we can continue to receive affordable health care, and how will you make sure every person in this country has that same access? How will you deal with the rising costs of gas and food – costs that are going up so quickly that this middle-class family is working additional jobs to afford it all? How will you take on big businesses that choose to put their own profits over the health and safety of our children? How will you enact change to protect our environment? And how will you make sure that my daughters will have access to an excellent education in safe, well-maintained schools?

Yes, Iraq has been the #1 issue in this campaign, but the truth is that for someone like me, Iraq is a small issue. I want the soldiers home as much as anyone else, but if we don’t fix things at home, what will these men and women have to come home to? Unemployment. Gas and food they can’t afford. Health care that is so expensive people must weigh if going to the doctor for a health problem is worth the cost. Rising violence from the desperate situations many are forced into. Foreclosure. Schools that are overcrowded and short on good teachers. What kind of a welcome home is that?

While the media is bogging you down with controversies over if you wear a flag pin or not, my oldest daughter is being denied insurance coverage for her autism, because they feel it is an “incurable and untreatable” condition. While you argue over whether tax cuts should be for those making under $75K or under $200K, I spend $50 to fill my car’s gas tank each week, a necessary expense because I live in a city with poor public transportation and alternative fuels aren’t given a chance thanks to the oil lobbyists who want to maintain their record profits.

Despite all of that, I have it pretty good compared to many in this country. We still have food, we still have some luxuries, and we still have our house. As long as my husband isn’t laid off – a real risk we’ve faced three times in the past year – our bills are still paid each month and the needs of our family are met. But there are so many who can’t even provide the most basic needs for their families. Food banks are running out of food because of the growing number of people – even middle-class – who must now turn to them for help. Should my husband be laid off, I could be one of those people, too, depending on charity and the kindness of others to feed our family.

I’m not scared of terrorists – I’m scared of my own country. I see a government who cares more for large corporations than it does for individuals, and who would rather spend thousands of dollars investigating steroid use in baseball than think up a way to give all Americans basic health coverage. Lots of people around me are losing the battle to be successful. They’re not looking to be rich – just have all of their needs and some of their wants met. They work hard, but they’re losing hope that things will ever get better. I’m watching the middle class deteriorate and the poor reach new levels of poverty that anyone sitting in their designer suit in Congress should feel is obscene.

So please, be that person who is smarter than the average American. Show us that you understand that a country cannot be great unless it is meeting the needs of all of its people. Prove to us that better days will come because of your ideas and actions. I don’t just want hope, I want a solid plan, and I want to know that your first priority – before turning your gaze outside of our borders – is to make sure everything inside those borders is the best it can possibly be.

Sincerely,
An average mom



The Full Story of "The Event"

I nearly forgot to let you know that I’ve posted my recap of the event I went to in New Jersey two weeks ago. You know you want to find out what happened.