Looking Ahead

Cordy had her first meeting with a behavioral therapist  last week. Her psychologist had recommended setting up a meeting, but it had slipped my mind until last Wednesday when the therapist called and asked if we could meet that Friday. At our house. (Yes, I frantically cleaned.)

The meeting went well, I think. The behavioral therapist wanted to get a general assessment of Cordy’s personality, as well as what she’s struggling with and where she needs help. Since it was at our house, I expected that Cordy, having been tired already from summer camp that day, would probably let her guard down and just be herself.

Cordy is a smart kid. She’s aware that she’s different from other kids and when Cordy is at school or summer camp, she tries her best to hold in a lot of her quirks. Her teachers see very little stim behavior in the classroom, with only a little more of it on the playground. She rarely snaps at anyone at school. But at home, she knows she’s in a safe space and usually lets off steam as soon as she gets home. She’ll often flap, pace, make up a story to herself, or isolate herself with a book or computer time. If we ask anything of her, she’ll sometimes overreact and snap at us.

Meeting the therapist, however, she kept up the in-public facade for most of the hour. She was sweet and charming, answering the therapist’s questions and asking several questions of her own. There was no stimming, other than a little bit of wrestling with the dog at one point.

But the disconnect was still there. Cordy had a book in her hand nearly the entire time, and if she lost interest for even a moment, her face was quickly hidden behind the turning pages. She became loud and almost shriek-y when talking about the things she fears (bees, bugs, roller coasters, Kaos in Skylanders, the dark), although she wouldn’t discuss the real social anxieties that make it hard for her to function at times.

And she became upset with me when I told the therapist about where she needed to improve in her life skills, listing age-appropriate self-care tasks and basic safety precautions that we’d like her to do on her own but have seen little success. Cordy tried to shush me, saying I was “giving away all of [her] secrets.” She’ll gladly talk superficial fears and tasks that she has trouble with, but when we try to talk about real anxieties and areas of deficit, she becomes hyper-sensitive and doesn’t want anything said. My daughter, the perfectionist. The therapist said that’s a very common trait of gifted and twice-exceptional children – they hold themselves to nearly impossible standards and can’t stand for anyone to think they’re not perfect.

She likes to win.And most kids just accept an end of the school-year award and stand on the stage. Cordy is ready to give an acceptance speech for being The Best. We should probably add modesty to our list to work on.

It was surprisingly difficult to talk so much about Cordy’s issues. I usually try to balance everything out with a positive quality for every problem area, like “Well, she doesn’t really have any close friends…but she’s so sweet to other kids and can tell great jokes!” Not to mention, Cordy was sitting right there in the room with us – what if she was internalizing everything I said? Sure, she was mostly absorbed in a book when I was talking and likely heard little of the conversation, but I was carefully considering every word choice in the moment so Cordy wouldn’t think I didn’t like her for her faults. I danced around each topic, pointing to “areas to strengthen” and “ways to help her be more successful” instead of “problem areas” or “bad behavior.”

And I wasn’t sure where to draw the line in sharing so many of my daughter’s weaknesses – did I sound like the hypercritical parent who considers her child “broken” over a bunch of faults (oh, I hope not!) or did I dismiss her problems too much and make it appear that she really doesn’t need any help and I’m making a big issue out of nothing? I named several problem areas (that I didn’t call problem areas), big and small, specifically to have them said out loud to a professional, so that we might then find solutions to overcome these issues.

The therapist listened intently and took a lot of notes during our discussion. She plans to consult with the psychologist to determine where to begin, and then we’ll start working on learning new adaptive skills in two weeks. I’m hoping this will be a new period of great progress and growth for Cordy. I only want for her to be better prepared for the world around her and help her better cope with her peers and the outside world before she reaches (oh…it’s hard to even think about this) puberty.

Because we all remember middle school (some of us would rather not), and I think few would say that the majority of 11-13 year old kids are tolerant and accepting of peers who are different and don’t quite fit in. I’d like to be proven wrong on that statement, but I have my own emotional scars from middle school and I’d also rather prepare my daughter for what’s ahead.

I don’t expect or want her to conform to the behavior of her peers, although I do want her to better understand “typical” social behavior if only to know what is OK from her peers and what is rude or harassing behavior that she should not tolerate. And a little part of me wants her to learn the social game, if only a little, so that she might find enjoyment in friendships.

We’ll see how this goes, but I’m hoping for good results.



Make Your Instagram & Facebook Apps Less Annoying

I love technology, and I love my social media apps for my iPhone. However, one thing I’m not so fond of is when an app is “upgraded” to provide new features and automatically turns ON those features without clear directions of how to turn them off.

Two of my most-used apps did this to me recently. Instagram just last week introduced video capabilities, which on it’s own is an awesome upgrade, but isn’t so cool when you’re browsing through Instagram in a quiet place and suddenly sounds of children laughing or someone talking loudly to the camera is coming out of your phone and you’re nearly dropping the phone in a frantic scramble to turn down the volume, close the app, or anything to MAKE IT STOP because people are staring at you like you have no manners.

A week before that, I noticed my Facebook app suddenly had a little bubble at the top with a friend’s profile pic in it. That was new to me, so I tapped on it and realized it was a message sent to me. I read the message and then moved on, but the bubble stayed at the top. Enter a not-so-amusing game of “OMG, how do I make the bubble disappear so it isn’t blocking other things on my screen?” I quickly learned tapping on another message, hoping it would get rid of the first didn’t work – it just gave me another bubble!

The Facebook Message bubbleI love y’all, but I don’t need you in a bubble on my screen.

Perhaps you’ve been having the same frustrations?

Allow me to share what I’ve learned:

Turning off auto-play for Instagram videos

To turn off the auto-play for videos on Instagram (for iPhone – I don’t know if this works for Android), open your Instagram app and click the Profile button at the bottom right of your screen. Then click the little gadget cog in the upper right hand corner to bring up the Options screen.

Instagram Profile screen

Scroll down to Preferences and slide the Auto-Play Videos option to Off.

Turn off auto-play for Instagram

And that’s it. Ta-da! No more embarrassing surprises when checking Instagram while your kids pick out new books at the library!

Getting rid of the message bubble for Facebook

If you’ve been trying to get rid of the bubble, you may have noticed that you can tap and drag it around the screen. This solution ended up being easier than I thought it would be.

Tap and hold down on the bubble, and then drag it to the bottom of the screen. As you get to the bottom, a circle with an X will appear at the bottom, with the message “Drag here to hide.”

Hiding the Facebook message bubble

At this point, you know what to do – drag the bubble to the circle and it should vanish.

These both worked for my iPhone, but I can’t guarantee the same method works for Android. They should be similar, though.

Hope these tips can help you avoid a little bit of frustration in your daily social media checking!



Birthdays Don’t Stop To-Do Lists.

Today I’m 37 years old. Light the candles, dim the lights! Sing it with me, everyone!

Hap-py birth-day to meeee,
I’m go-ing to the BMV
To get my new li-cense
For a $25 fee!

(And don’t forget the registration renewal!)

Yes, for my birthday I’ll be buying my own present – the gift of continuing to drive. On the upside, four years ago I was heavier and so this photo should be an improvement over the previous one. Then again, better is such a subjective term when it comes to a driver’s license photo. I mean, getting stung by a bee may be better than being bit by a black widow spider, but that doesn’t mean either experience is desired.

Driver's license photos never look goodI think there’s been some improvement since that photo.

It’ll be fun to update my weight on the license and not “accidentally” forget 30 pounds for the official record. For once my weight is currently lower than what’s listed on the card. Oh, who am I kidding? I’ll probably still lie and set a lower goal to aim for. They never question the answer I give, which is why I’ll never complain about the wonderful people who work at the BMV.

And just in case that wasn’t un-birthday-like enough for the day, I’ll be frantically cleaning the house in-between working to get ready for a late-afternoon appointment with a behaviorist for Cordy. When I set up the appointment, I didn’t realize she intended to meet at our house, or I might have made an excuse about being busy until late next week to buy me some time.

I’m sure I’m not alone in having a panic attack when a professional comes to the house for the first time. Our house is cluttered, I’m never on top of the dust, the carpets have a few stains, and there are some cobwebs in hard-to-reach corners, but it’s not unsanitary. And yet I still have this moment of freaking out that this woman will come into our house and quickly make a mental note to call child services for raising our children in an unfit home. So I toss all the clutter in boxes and shove them in the closets or in the garage, hoping she’ll think we’re a respectable family.

(I know, I know…hiding clutter still wouldn’t make us respectable. Quit laughing.)

I’m not sure what to expect from this behaviorist. She works with the psychologist who evaluated Cordy, and the psychologist recommended that Cordy begin behavioral therapy soon to help with adaptive skills. (Daily life stuff that she refuses to do on her own.) I’m hoping the initial meeting will be short since, you know, birthday.

So that’s what’s ahead for my birthday. The kids get the Chuck E. Cheese birthday parties, while the grownups realize it’s just another day and there’s stuff to get done. However, gifts of Jeni’s Ice Cream in Rainbow Frozen Yogurt will be graciously accepted for when the stress of the day is over.

And the one lesson I’ve already learned this morning about turning 37: apparently at 37 you just don’t care about being as critical and start liking some of the photos of yourself.

Not a bad selfieExhibit A

 



Because I Know You All Care About My Health

You do care, right? Or at the very least, you’re interested in learning about my health woes so you don’t make the same mistakes. Hey, I’m OK with that. I’m a giver.

Not only did I have a big area of skin removed from my back last week, but on the same day I had an appointment with my primary care doctor as well. During the appointment, I mentioned that I have been feeling so tired all the time, even when I try to get enough sleep, and nothing seems to help. She decided that it would be best to have bloodwork done to check if something might be imbalanced and causing my fatigue. Tuesday really was human pincushion day.

I expected that maybe my thyroid was out-of-whack, which was why I was tired and struggling to not gain weight. Or maybe I was anemic.

The results were back on Friday, and for the most part they were normal. Except for one line of the report: Vitamin D. Last year when she checked my vitamin D levels they were very slightly low, and she recommended including more foods with vitamin D in my diet and taking a multivitamin. I’ve been doing that as much as possible, but the new test results showed my vitamin D levels were much lower than last year,  outside of the recommended levels and into “deficient” classification.

I’m not quite sure how my vitamin D levels managed to go even lower after I started taking a multivitamin more regularly. But if it’s related to feeling tired, well, I can’t question the results. I’m sluggish all the time. Exercise will give me energy, but finding the energy to get started is hard. And once I do start moving, my muscles want to give out on me far sooner than they should.

Vitamin D - Super Vitamin!Since getting the blood results, I’ve been reading more about vitamin D and it’s link to different health issues. I knew that being deficient in vitamin D could lead to weak bones, but there’s also solid research linking it to muscle weakness, metabolic disorders (including weight gain, increased risk of type 2 diabetes, and having difficulty losing weight), and fatigue. Huh. I didn’t realize vitamin D was the super-vitamin. Look out B-12 – vitamin D is coming to take you out of the spotlight.

I now must focus on getting more vitamin D. And this is where it gets ironic. Vitamin D supplementation is good, but the best way too get vitamin D is from the sun. Spending time in the sunshine is the easiest method for building up vitamin D in the body – the skin soaks in the sunshine, which triggers the body to make it’s own vitamin D in large quantities. Supplements work, but the body’s natural production is far more efficient and requires less time to raise vitamin D levels.

So spending more time with my skin exposed to sunlight would be a big help. However, wearing sunscreen blocks 95% of the vitamin D production. Which means to get my vitamin D sun therapy, I’d have to be in the sun for 15-30 minutes a few days a week without sunscreen. But because I’m a high risk for skin cancer, sunscreen is a must for being outside.

I’m damned if I do, damned if I don’t.

(And we won’t even discuss the fact that 15-30 minutes in the sun without sunscreen would have me a painful shade of pinkish-red, because this pale girl gets a pink flush just thinking about the sun.)

My doctor knows sunlight therapy isn’t an option for me, and didn’t even recommend it. I’m now on 5000 IU of vitamin D a day for at least the next six months. That seems like a lot to me. For reference, the average recommended daily value is 400-600 IU a day. She believes that getting my vitamin D levels raised should give me more energy and an overall better feeling of wellness. I’m willing to try just about anything to give me the energy to get more done.

I’ve been taking my supplements (they’re itty-bitty liqui-gels, so they’re easy to take) for five days now and I’m not sure when I’m supposed to notice any difference. I’ve been more awake the past couple of days, but that could be just from having the kids at camp and not being distracted when I work. I’ll re-assess in a few weeks to see if I think it’s making a difference.

I wouldn’t be surprised if more people have lower vitamin D levels now that sun safety has become such an important topic. We’re all wearing more sunscreen and trying to cover up in the sun to avoid skin cancer, but are we possibly setting ourselves up for other problems? I doubt  many adults drink a lot of vitamin D fortified milk, and there aren’t a lot of foods with high levels of it.

Here’s hoping this is the key to what’s been dragging me down.

Holy-Moley update:

The incision from having my mole and surrounding area removed is healing nicely. I’ve had to remind myself not to twist or bend too much, or it pulls at the stitches and hurts.

A few people have asked what it looks like. I’m not going to insert the photo in this post, because I respect that there are some squeamish folks out there who really DON’T want to see it. But if you do want to check it out, you can click here to see the incision. It’s about 3″ long with several stitches, just an inch or so away from my spine. It hurts if I lean back on it the wrong way, and sometimes the stitches poke me. I can’t wait to get them out next week.

The photo is, for me, a fantastic reminder of why sunscreen is important. If you or someone you care about has any moles that you’re concerned with, the image of my incision can be great motivation for making an appointment with a dermatologist.

Early screening saves lives – this will leave a nasty scar on my back, but I also feel good that we caught it before it had any chance to turn into cancer.

Edited to add: Just in case you think I’m endorsing the brand of vitamin D in the photo – liqui-gels were recommended, and this brand was selected because I recognized the name and it was on sale when I was at the store. I mean, I’m happy with it so far, but it’s not sponsored in any way.



Planning Summer Fun & A Cedar Point Giveaway!

How’s your summer going so far? Summer camp started for us this week (for real this time!), so the kids are now occupied during the week while I work in peace at home. Aaron has started his new job as well, and so far after day two it’s still going very well.

We’re already planning out what we’d like to do with our weekends for the next two and a half months. I’ll be traveling to Chicago for BlogHer in July, Aaron has some superhero appearances for charity, and we have a 5K this coming weekend. That still leaves several weekends open for us.

Cedar PointThe topic of Cedar Point and Lake Erie has come up several times in our discussions. We were thrilled to attend an early-season event at Cedar Point in May, where we discovered  Mira was finally tall enough to ride the big rides, including her first upside-down coaster. The entire family loves Cedar Point – even Cordy, who is terrified of roller coasters, can still name several rides that she adores in Camp Snoopy.

It’s nearly impossible to see and do it all in a single day, so when Mira asks, “When can we go back to Cedar Point?” it’s fair to consider going back again this summer, if only to seek out the things we didn’t have time for in May, and maybe return to a few favorite attractions as well.

Beyond all of the “usual” (if you can call anything at Cedar Point usual) fun, they have some additional events planned for the Fourth of July weekend. There will be an all-you-can-eat Picnic at the Point all weekend long,  July 4-7, from 4-6 p.m. on each day. One price will provide all of the fried chicken, hot dogs, brats, potato salad, and baked beans you can eat – but make sure to leave room for ice cream, too! Sounds even better than our extended-family get-together for the Fourth. Maybe we should move our family celebration to Cedar Point instead?

And of course there has to be fireworks, right? On July 4, the nighttime sky will light up with a fantastic fireworks display starting at 10:30pm.

The holiday isn’t just about the food and fireworks, though. Cedar Point also wants to show our military men and women their appreciation for all they’ve done for us as well. Any active, retired or honorably-discharged member of the United States Armed Forces can receive one FREE regular admission ticket to Cedar Point or Soak City on either Thursday, Friday, Saturday or Sunday, July 4-7, 2013.

Valid forms of ID include Active Duty ID, Retired Personnel ID, VA ID, or a copy of DD-214 discharge papers and photo ID. Additional tickets can be purchased for spouse and children at normal military discount price of $39.99.

Giveaway!

Hugging Snoopy at Cedar PointReady to try out the GateKeeper or one of the other amazing Cedar Point roller coasters for yourself?

I’m going to help get your summer started off right by giving away a family four pack of Cedar Point single-day tickets for one lucky reader!

For those who may not know, Cedar Point is in Sandusky, Ohio, right on Lake Erie. (I’ve heard you can see Canada from the top of the Millennium Force on a clear day.) It’s a great day trip for those in the Ohio-Michigan-N. Indiana areas, but even if you’re not in those areas, it can be a fun mini-vacation as well. There’s so much to do in and around Cedar Point that you could easily fill up 2-3 days.

To enter, complete the mandatory entry in the Rafflecopter widget below. (You may need to wait a moment for it to load.) Additional entries can be earned by completing the other activities, but they are entirely optional.

I’ll select a winner after June 26, giving you plenty of time to use your tickets before summer is over. Winner will be contacted by email and will have 48 hours to respond or an alternate winner will be selected. Tickets are good anytime during the 2013 Cedar Point operating season – check their website for days and hours of operation.

Good luck!

a Rafflecopter giveaway

Full disclosure: Giveaway prize is provided by Cedar Point. No compensation was received for this post – my family genuinely loves Cedar Point and I was the one asking Cedar Point if I could help share the love.